Monthly Archives: March 2010

Introducing Our Blog – Fluid Drained from Abdomen – Chemo Hold

Okay, we are now official with updates in a blog format.  I know several of you had asked about this possibility – Denise and I had spoken about it at the onset of Steven’s journey, and she reserved this URL then.   But a blog is time consuming to set up, and she was getting lots of support on the Facebook Team Steven page and her time was simply dedicated to just being by Steven’s side.  I decided to take the info and run with it this weekend and post all my prior updates because we really needed a site to host the online donation button.  Technically it’s a joint venture, as I get all my info from her anyway, so here we are!

Steven was having pain in his upper abdomen last week for the first time since being back in Tulsa.  He had surgery Thursday afternoon to place a temporary hemo-dialysis port in his neck, do a bone marrow biopsy and pull some fluid from his abdomen to determine what was going on there.  His blood culture from the 22nd showed the infection is still in his blood, which could take 4 – 6 weeks to clear. 

Good news:  Bone marrow and fluid pulled from stomach both tested negative for cancer cells!  Wonderful!  They decided not to pull his chemo port during Thursday’s surgery and will instead test his blood every day for infection.  He had a lot of pain from his pancreatitis along with fevers through the weekend, and pain meds weren’ t helping.  They postponed starting chemo today since it knocks his immune system down so much.  I was happy to hear he’ll have another week to gather more strength beforehand.  Instead they made a plan to drain the fluid from his abdomen.

On Friday morning Steven had awakened and wanted to stand up!  His parents Steve and Denise helped him sit up for a while, and then he wanted to lay at the foot of his bed.  He had his dad go out and get his suitcase because he wanted to see his own clothes and shoes.  Awwww!  🙂  His mom said he’s so ready to get out of that hospital!  She said Friday morning was the strongest she’s seen him since March 4th before they did his last chemo.  Yea!!!

They got to move briefly out of ICU to the 3rd floor, but had to head back to ICU yesterday when they planned to drain the fluid – it’s much easier to monitor blood pressure closely since losing so much fluid at one time can be dangerous.  This is a step forward in relieving his pain and helping him get better.  He also received dialysis yesterday.  At the end, he pulled out his NG tube AGAIN!  His dad asked why he did it and he said he had a dream that he didn’t need it and would be healed if he pulled it out.  🙂  Awwww.  I just love this boy.  Yeah, he’s on a lot of pain meds right now to make him comfortable  … LOL.  But still … his mom thought maybe he knows something they don’t.  The tube was put down the other nostril this time.  Now the fluid being extracted is more yellowish rather than green, which is good!!!  So perhaps he was right?!  Onto healing!

Last night was kind of a scary one. His pain patch released too much medication after he started running a high fever through the night.  His BPMs shot up over 170, his breathing was rapid, oxgen levels dropped.  His mom said it was pretty frightening getting him back to normal.  No dialysis today.  They drained 5.5 LITERS from his abdomen this afternoon, which took about 90 minutes to complete.  Last I heard, he was resting as they monitored to see how his body would react to the fluid being gone.  Tomorrow they will do a dialysis treatment and then pull his temporary dialysis port. On Wednesday they will put in a permanent port, which will be good to have in place before they start chemo next Monday.

Denise’s sister, Michelle Smith, helped organize an amazing benefit concert they had in Bristow, OK on Saturday night.  My brother Jeff (Denise’s hubby/Steven’s stepdad) said the concert was awesome and that Michelle knew the right guy/people to bring.  He said it was the best show he’s seen in his life, because it was all about Team Steven.  There was apparently such reverance and love in the room.  It was a beautiful, peaceful time for people to come together to lift Steven up for healing.  Thanks to Michelle and to everyone who helped!!! 

For those who were unable to attend who still wanted to give a donation, check out the left side of the page!  We now have an online donation capability!  Yea!!!  Convenience!  PayPal does extract somewhat hefty fees (for credit card processing – but if it’s linked to your bank account the fees are minor), so sending a check is still probably best if you want them to have the entire amount if you don’t have a PayPal account, but we want something that works for everyone – TA DA!!! 

🙂  (Yes, I’m happy to have mastered the donate button widget!)

As always, thank you for your continued good thoughts and prayers for Steven.  I hope you like the new blog format and that it will be easy for you to access or send to your friends who are keeping Steven in their hearts.  I added an email subscription area on the sidebar, so you can sign up for updates to be emailed anytime I create a new post!  I am thinking of eliminating my email lists to that end, so that those of you who really want to follow closely can subscribe and do it via that avenue.  What do you think?  Or do you still want me to send an email out with a link every time I post an update?  Let me know what you like.

Sending Steven lots of good thoughts in hope that he’s feeling better after having that fluid drained!

Continued Progress, New Port & Life Decision

I’m going to give you a full update, but want to let you know at the outset that yesterday was a challenging day with difficult scenarios presented for decision. I think you’ll find that Steven’s fighting spirit continues to inspire. I’m asking in advance for each of you to PLEASE continue all of those good thoughts and prayers, as he’s getting ready to enter an extremely tough part of this fight.

That being said, his white blood count went into overdrive earlier this week, reaching 11.2 (higher than normal so he wouldn’t need WBC booster shots every day), and his platelets kept rising on their own. He had a CT scan earlier in the week to show what’s going on with his digestive system, liver, etc., because he had some jaundice which was evident in his skin color and whites of his eyes. He wanted a wheelchair ride in the middle of the night (difficult for one parent to do while the other sleeps on the couch), but he did eventually get some time out of that bed. See the beautiful attached photo of Steven with his mom and dad during a stint in the wheelchair to go see the snowfall. This picture brought tears to my eyes. It’s so nice that parents who are divorced can come together for their child in need.

He was fighting high fevers this week, over 104, which is the highest they’ve been. They eventually broke … may have been caused fighting against a yeast infection contracted through his dialysis port. The dialysis tech was having a hard time getting his dialysis port to work, and it finally stopped working Tuesday. They removed it from his groin with a plan to replace it with one in his chest in 48 hours (today) as long as his blood cultures didn’t grow anything new. With everything on target, they said he could get dialysis again in 2 days. His mom said he was constantly asking when they’re going home, saying that he’s so much stronger in his mind than he is in body. He still hasn’t been able to eat anything in the past two weeks, and all nutrition has been received via I.V.

The GI team thought his liver was causing a lot of the issues, but lab reports didn’t support that theory. All the teams (Oncology, GI, Nephrology, Infectious Disease, PICU floor Drs) scheduled a conference yesterday to come up with a plan where they’re all on the same page with a common goal. Potential obstacles were: Making sure the yeast infection is gone from his blood; determining why his stomach is bloated (possibly liver related); dealing with the pancreatitis; removing the dialysis port from groin to chest; and then beginning chemo again. Denise was extremely anxious before the meeting, because she recalled the last time they had a conference in St. Louis before they basically sent him home to die.

Steve, Denise and Jeff met with a team of 9 doctors yesterday, and the question posed was: Do we want to get a dialysis port placed tomorrow and continue on with dialysis and chemo with no guarantee the chemo will cure the cancer, or do we want to let him slip into a coma and die by Sunday? The reason for that question is because dying from kidney failure is painless; dying from cancer, however, is very painful. Denise said there was no question in her or Steve’s minds as to what the answer was, but the doctors insisted on asking Steven what he wanted to do and planned to go with his decision.

As if you couldn’t imagine, our brave, young warrior, Steven, chose LIFE!!!

It is going to be a challenging journey with no guarantees, but he had no guarantees of even surviving this long a few weeks ago and he’s surprised everyone! I admire my sister-in-law for her strength and her nurturing. She and Steve have been so steadfast through this all in support of their son, and I know my brother hates seeing Steven or Denise is pain and this has been extremely hard on him as well. My heart is constantly with all of them.

SO … NO ONE is giving up!!!!! Today Steven will have a new dialysis port placed in his chest so they can proceed with the new plan. Many of you on the TEAM STEVEN page on Facebook (over 2,250 members now!) know there is a Benefit Concert planned in Bristow, OK on Saturday night. Neither Denise nor Steve are working right now to be by his side constantly, so both parents are being impacted by loss of income combined with rising medical costs.

SUPPORT THE FAMILY WITH A $10 DONATION

People have been asking if they can still contribute even if not in the area. ABSOLUTELY!! As most of you know, we have set up a benefit account for Steven’s family, and you can mail a check or donation at any time. Think about this … with over 2,250 members now along with extended networks including this one, what if EACH member of our TEAM STEVEN gave just $10 to help??? It’s the cost of a few value meals at McDonald’s, or 3 Café Mochas at Starbuck’s. Wouldn’t that be worth knowing you helped Steven’s parents, who needed some support during a challenging time? Isn’t $10 worth the emotional roller coaster we’ve all been on these past few weeks with Steven and his family, and being able to behold the brave and strong warrior fighting the big, bad cancer? David takes on Goliath. Come on – you have to pay more than that to ride the roller coaster at Disneyland!!! 🙂

So, if it is in your heart, we would love to request your support in the form of a $10 donation if you cannot make the benefit (we know some of you have already sent donations or gifts – thank you so much for your generosity). We are still hoping to have an online donation option, but ran into some snafus. In the meanwhile, please feel free to send your donation check to:

Steven Wilson Benefit Account (make check out to)
c/o Sharon VanOrsdol (in note section)
Community Bank
P.O. Box 1020
Bristow, OK 74010

Again, if you make a donation and want your red TEAM STEVEN bracelet, email me afterward at valeriesargent@yahoo.com and we’ll make sure you get yours! I just picked up more greeting cards for Steven yesterday. If you also want to encourage him and continue to cheer him on, send your motivating cards to:

Steven Wilson
c/o Denise Sargent
10111 S. Sandusky Ave.
Tulsa, OK 74136

It’s amazing how much your show of support has meant to the family. All of the love coming from so many different faces and places helps make them all not feel so alone, and it gives them confidence to proceed in battle, knowing so many are on their side.

Thank you for opening your hearts to Steven and my family. The outpouring of concern from people who love and care has been so touching. I have seen from so many of your responses how much this strong young man has come to mean to you, and I thank you for your continued thoughts of healing, prayers for recovery and good vibes in general. Steven has inspired us all. Let’s keep focusing on that continued healing (smooth port placement, protection and maintenance of kidney, strength of body for chemo) so that HE can continue to inspire us for years to come.

Remember …. Steven doesn’t do odds … he DEFIES them!!! May he always continue in this stead.

With gratitude, hope and love,

Valerie

PS – Sorry for the length … trying not to clog your Inbox, so had to cram a lot of info (I know some of you want LOTS of detail!). I take comfort in the fact that I’m not nearly as long winded as Doc Jensen who does EW’s weekly recap of the TV show “Lost.” He makes me look like the Queen of Brevity. Bless him!

Steven with his dad, Steve, and mom, Denise, checking out the snowfall.

Still Making Progress – New Chemo Plan

More progress is being made day-by-day, and with every step we are amazed and filled with gratitude. I thought you would like to hear today’s update directly from Steven’s mom, my lovely sister-in-law, Denise, and know that your good thoughts and prayers are still hard at work – he is truly our miracle boy:

“The doctors haven’t made their rounds yet but here’s what I know: My boy is coming back. A couple of days ago I asked that he be taken off his pain medication drip because I didn’t feel he needed it, so he was finally weaned off of it completely yesterday. His mental status has improved greatly and his bowels are moving again. He’s breathing better, he’s talking better and I stand in awe. What a fighter!”

Then another update from her: “What a glorious day! Steven’s oncologist came in wearing a smile! and said his cancer levels continue to drop and she is cautiously optimistic about his progress, especially since she told us last week that she really didn’t think he’d make it and that if he pulled through, he would be the sickest kid she’s ever seen in the PICU make a comeback. She tried all last week to prepare us for his death but we wouldn’t accept it. My heart is dancing.”

Pretty great, huh? I don’t know how mentally alert he is yet, but he’s coming around and far exceeding expectations from last week, as you saw from the oncologist. There is something to be said for the universal power of intention and healing, and Steven has SOOO many people on his side, sending love, good thoughts and prayers. My brother said Steven was also moved yesterday to a sports bed to move his body around to exercise respiratory and muscles to begin body healing, as well as prevent bed sores, etc. We’re all feeling pretty grateful. Since Steven is having such a good day today and my darling little twin nieces (Jaden and Jaxie, age 7) are on Spring Break this week, Denise is actually going home for a few hours to spend some time with the girls. They’ll have a picnic lunch on the living room floor and paint fingernails, so Steven’s mama is getting some good balance today.

Oh, and no, I was not thinking of Sarah Palin’s daughter, Bristol, when I wrote yesterday’s message (corrected electronically on FB). Just a quick correction to the address of where to mail your donations for the family in Bristow (I’m sure the zip will allow the post office to correct my error if you already mailed yours – whoops!):

Steven Wilson Benefit Account (make check payable to)
c/o Sharon VanOrsdol (in Note section)
Community Bank
P.O. Box 1020
Bristow, OK 74010

Again, be sure to email me at valeriesargent@yahoo.com afterward to give me your mailing address for your TEAM STEVEN bracelet(s). “Can You Hear Us NOW?” T-shirts are possibly in the works for our TEAM STEVEN Network as well! Ha!

Oh, and one of our TEAM STEVEN members works for the Oklahoma Blood Institute in Tulsa, and said you can donate blood or platelets there — 4601 E. 81st Street. They supply the blood for Saint Francis, but can do a “Credit to Patient” plan for Steven and she confirmed that ANYONE with ANY blood type can donate in his name. Family is also trying to organize a blood drive in Bristow as well. If you are donating blood in other parts of the country, please inquire about the “Credit to Patient” for Steven Wilson at St. Francis Children’s Hospital in Tulsa, OK. Who would have thought reading all those vampire books would actually lead to me asking for blood? LOL. 😉 Kidding! Thank you to those who donate regularly – this is why donations are needed.

Okay, so that’s the scoop. I continue to look down at my TEAM STEVEN bracelet and send him loving thoughts constantly. If things continue to progress the way they have been, you can trust that he is still coming along and continuing his fight and making progress. I will plan to update you at the end of the week unless we have any major news or breakthroughs. As always, thank you for your care and concern for my nephew. Steven is so lucky to have so many amazing people on his side – we all know it is the love of SO many people lifting him up that has helped carry him through. If you would like to send him a card to continue to encourage him and cheer him on, please send to:

Steven Wilson
c/o Denise Sargent
10111 S. Sandusky Ave.
Tulsa, OK 74136

In gratitude,
Valerie

Continued Progress – Another Message from his Mom

More progress is being made day-by-day, and with every step we are amazed and filled with gratitude. I thought you would like to hear today’s update directly from Steven’s mom, my lovely sister-in-law, Denise, and know that your good thoughts and prayers are still hard at work – he is truly our miracle boy:

“The doctors haven’t made their rounds yet but here’s what I know: My boy is coming back. A couple of days ago I asked that he be taken off his pain medication drip because I didn’t feel he needed it, so he was finally weaned off of it completely yesterday. His mental status has improved greatly and his bowels are moving again. He’s breathing better, he’s talking better and I stand in awe. What a fighter!”

Then another update from her: “What a glorious day! Steven’s oncologist came in wearing a smile! and said his cancer levels continue to drop and she is cautiously optimistic about his progress, especially since she told us last week that she really didn’t think he’d make it and that if he pulled through, he would be the sickest kid she’s ever seen in the PICU make a comeback. She tried all last week to prepare us for his death but we wouldn’t accept it. My heart is dancing.”

Pretty great, huh? I don’t know how mentally alert he is yet, but he’s coming around and far exceeding expectations from last week, as you saw from the oncologist. There is something to be said for the universal power of intention and healing, and Steven has SOOO many people on his side, sending love, good thoughts and prayers. My brother said Steven was also moved yesterday to a sports bed to move his body around to exercise respiratory and muscles to begin body healing, as well as prevent bed sores, etc. We’re all feeling pretty grateful. Since Steven is having such a good day today and my darling little twin nieces (Jaden and Jaxie, age 7) are on Spring Break this week, Denise is actually going home for a few hours to spend some time with the girls. They’ll have a picnic lunch on the living room floor and paint fingernails, so Steven’s mama is getting some good balance today.

Oh, and no, I was not thinking of Sarah Palin’s daughter, Bristol, when I wrote yesterday’s message (corrected electronically on FB). Just a quick correction to the address of where to mail your donations for the family in Bristow (I’m sure the zip will allow the post office to correct my error if you already mailed yours – whoops!):

Steven Wilson Benefit Account (make check payable to)
c/o Sharon VanOrsdol (in Note section)
Community Bank
P.O. Box 1020
Bristow, OK 74010

Again, be sure to email me at valeriesargent@yahoo.com afterward to give me your mailing address for your TEAM STEVEN bracelet(s). “Can You Hear Us NOW?” T-shirts are possibly in the works for our TEAM STEVEN Network as well! Ha!

Oh, and one of our TEAM STEVEN members works for the Oklahoma Blood Institute in Tulsa, and said you can donate blood or platelets there — 4601 E. 81st Street. They supply the blood for Saint Francis, but can do a “Credit to Patient” plan for Steven and she confirmed that ANYONE with ANY blood type can donate in his name. Family is also trying to organize a blood drive in Bristow as well. If you are donating blood in other parts of the country, please inquire about the “Credit to Patient” for Steven Wilson at St. Francis Children’s Hospital in Tulsa, OK. Who would have thought reading all those vampire books would actually lead to me asking for blood? LOL. 😉 Kidding! Thank you to those who donate regularly – this is why donations are needed.

Okay, so that’s the scoop. I continue to look down at my TEAM STEVEN bracelet and send him loving thoughts constantly. If things continue to progress the way they have been, you can trust that he is still coming along and continuing his fight and making progress. I will plan to update you at the end of the week unless we have any major news or breakthroughs. As always, thank you for your care and concern for my nephew. Steven is so lucky to have so many amazing people on his side – we all know it is the love of SO many people lifting him up that has helped carry him through. If you would like to send him a card to continue to encourage him and cheer him on, please send to:

Steven Wilson
c/o Denise Sargent
10111 S. Sandusky Ave.
Tulsa, OK 74136

In gratitude,
Valerie

Kidney Improving with Dialysis – Holding Steady

I have a Monday update for you – thank you for your continued concern and inquiries as to how Steven is faring. After an emotional roller coaster of a week last week, we all breathed a sigh of relief during a steady weekend for our sweet boy.

Steven started dialysis on Friday a few hours after his surgery, and his kidney started responding positively right away with his kidney function level improving dramatically by Saturday. His white blood cell count maintained at .3 and his LDH cancer cell levels still continued to decline. Despite a somewhat restless night on Saturday, after a busy weekend of dialysis and a lot of doctor/nurse action yesterday, he continues to rest well today.

He had some bad nosebleeds prior to the surgery, and today the ENT doctor removed the nasal packing, along with some large clumps of blood that had hardened in the back of his throat (sorry – hope it’s not mealtime when you’re reading!). He will get another blood transfusion later today. I remember hearing somewhere that you can make blood donations in someone’s name. So, for those of you in the Tulsa area who want to DONATE BLOOD, Steven is TYPE A POSITIVE. BUT, he can have ANY BLOOD TYPE of platelets. He has to have platelets everyday and they’ve used many different blood types of platelets for him. Feel free to donate blood or platelets for Steven Wilson at St. Francis Children’s Hospital.

They did dialysis on him yesterday for his kidney and will do so again today. The nephrologist said they are slowly catching up to him because he was pretty far gone. But he also said that when Steven comes around mentally he won’t remember any of this. His hair is coming out by the handfuls, which he will not like when he looks in the mirror, as he cherished his hair and would never shave his head to preempt the hair loss.

The doctor also suspects pancreatitis (inflamation of the pancreas) may be going on, so they hope to get that under control. Today we are asking for thoughts and prayers for the healing of his pancreas, high platelet counts, high white blood cell counts, full return of kidney function and, of course, for the cancer to be healed.

Also, our TEAM STEVEN Bracelets have arrived! Do you want to show support for our miracle boy??? Again, we’re not selling them, but appreciate any donation amount you have in your heart made to Steven’s benefit account to help his parents with expenses. To receive yours, mail your check to:

Steven Wilson Benefit Account (make check payable to)
c/o Sharon VanOrsdol (in Note section)
Community Bank
P.O. Box 1020
Bristow, OK 74010

Then email me at valeriesargent@yahoo.com with your name and full mailing information to get your bracelet(s). We’re still finalizing an online donation option, so stay tuned for more details.

We have over 1,600 MEMBERS on our TEAM STEVEN group on Facebook!!! WOW! If you haven’t joined the party, feel free to jump on the bandwagon and send some love there. The family LOVES to hear from everyone all over, and any messages of support are fantastic:
http://www.facebook.com/p.php?i=543254174&k=52F53ZV3QTX15AEITAXVPVW2RR1B6Z&oid=10150104869275494

So that’s the latest. Steven continues to hold steady, and your continued thoughts and prayers of love and healing are SO welcome right now. He’s not out of the woods by any means … but it is Monday … a day that last week they didn’t think he would see. What a miracle, as that sweet spirit of his continues to fight. His impenetrable will along with all of the positivity and focus are working. KEEP IT UP, TEAM STEVEN!!!! Thank you, as always, for your caring and support for Steven and the family. Sending a big hug!!!

Peaceful, encouraged and hopeful,
Valerie

Surgery was a Success – He’s Okay!

Just a quick, AWESOME update for you: Steven made it through the surgery, and his vitals are good! So despite the fact that it was a life threatening surgery that had slim chances of success or survival, he made it through. I keep saying that Steven doesn’t do odds, he DEFIES them! We have another miracle on our hands. That boy’s fighting spirit is so strong, and your support has been incredible.

So in the surgery they placed the dialysis catheter, and they should be able to begin the dialysis within the next few hours. Hopefully they will be able to revive that brave little transplanted kidney, so send that incredible little organ all your love! Our sweet Steven now has a fighting chance. May more miracles continue to come his way.

Two things to share with you. I am attaching for you two photos – one is of my brother Jeff and Steven from when they were in the St. Louis Hospital. Steven is like a son to my brother, and he loves Steven so much. I thought it would give you a little visual to hold in your heart as you continue to send those good healing vibes. Secondly, I wanted to share with you what I did when it was time for Steven’s surgery – cue picture # 2.

I went down to the ocean’s edge at surgery time today to have a little chat with the Big Man upstairs. Convening in that peaceful place as I listened to the best songs on my iPod was needed. I was overwhelmed with emotion, but not surprised, as a school of dolphins swam directly in front of me, fairly close to the shore (you can only see one fin in the picture, but there were MANY). As they did, the lyrics to the song I was listening to said, “So take from me my worry” as a lone bird flew above them, letting me know my dad was with me, and with Steven. Eventually even the crabs all came out on the rocks of the jetty in a show of solidarity, and a huge pelican swooped into the ocean as water crashed against the rocks and sprayed me, as I imagined the success of his surgery. And I knew everything would be all right. And it is.

“Can you hear us now? What about NOW?!?!” Thank you for continuing to be a part of the TEAM STEVEN network. We really believe that all of the positivity and love coming from so many people is making a huge difference. My mom said, “I have never seen so many people opening their hearts and letting the love and concern pour out. If people just did this all the time and loved all their fellow man this much, can you imagine how wonderful and perfect the whole world would be?” I can.

Cue John Lennon’s “Imagine.” 🙂

Thank you for your continued love and concern, prayers and good thoughts. My heart is filled with gratitude, and yes, today I am now the Manic Head Cheerleader of Team Steven. Ain’t nothing wrong with that kind of happiness. 😉

Breathing a sigh of relief for an entire family,
Valerie

Surgery Required for Dialysis to Live

We started the morning on a high note, but now STEVEN NEEDS YOUR SUPPORT once again!!! He has to have dialysis or they are saying he won’t live through the weekend. His poor little kidney is just not recovering.

Today they are going ahead and risking surgery to place the dialysis catheter. His mom said it’s their only hope. The odds of surviving the surgery are slim, but Steven has proven time and time again that he’s a fighter and a winner! We have ALL seen Steven miraculously defy the odds. Odds?!?! He won’t take no stinking odds!!! 🙂 I think the fact that he has SO many people cheering him on and sending love contributes to that. My friend Rebecca likened us all to the Verizon network, picturing a big group of us standing outside the hospital and shouting, “Can you hear us now? What about NOW?!?!”

So PLEASE … NOW is the time again to send some light and love his way. We are asking our support networks to please send good thoughts and prayers right now that Steven is able to: a.) Pull through this surgery, and b.) That the dialysis will revive his transplanted kidney. Other organs are okay – we just need to save that kidney!

On a high note as the day began, his white blood cell count was up to .3 today (it fell to zero yesterday, which was not discouraging since they anticipated rising and falling of the count through next week; being up to .3 from zero so quickly was a good thing). His BUN count, which measures the toxins in the body, was down a little today, so making the change to the new renal doctor was definitely the right move! She determined the medication he was on was actually what was making him so sick.

Denise said, “Steven & I are so humbled by the number of people lifting our boy in prayer. Please continue the Verizon network analogy, follow us wherever we go. We can always hear you.”

So I ask once again of you wonderful friends, please follow them now. If you are on the TEAM STEVEN group on Facebook, going there and adding a comment or prayer for the family is a great way to send love and support:
http://www.facebook.com/p.php?i=543254174&k=52F53ZV3QTX15AEITAXVPVW2RR1B6Z&oid=10150104869275494

Or simply take a little moment now to close your eyes and send some good vibes, sweet prayers and healing energy his way. Our little miracle boy needs some love right now to make it through this surgery … then he will have a fighting chance!

Thank you SO MUCH for your support!

Valerie
Head Cheerleader of the Team Steven Manic Depressives

New Doctor – Message from his Mom

Oh my gosh, you guys … I really do think your prayers and loving energy are working!!! Part of it is because Steven gets his fighting spirit from his amazingly brave and strong mother – when something is not working, she makes a change. A change has been made. I would like to share her latest update with you, because it would seem that there is new hope alive in the form of a new doctor. Here’s what Denise had to say with the latest:

“Steven is holding steady today, even though his kidney function continues to decline. Our oncology doctor here has been consulting with his renal doctors in St. Louis every day, but today I asked her to please stop consulting with them and just ask a local renal doctor what their opinion is. We’ve now got an adult renal doctor that works for St. Francis helping out the docs here at the Children’s Hospital regarding his kidney issues. This renal doctor seems to have hope and a plan. God works miracles through doctors. I know it’s ultimately up to God but it doesn’t do any good to pray to win the lottery if you don’t buy a ticket. So please keep praying for these doctors in their decision making.

I just read to Steven a stack of cards … literally, a STACK of cards that are pouring in from everywhere, offering words of encouragement and prayer books. One of you sent a beautiful picture from Hawaii and commented that you hope he gets to see it one day in person. Steven actually got to go there a couple of years ago through the Make-a-Wish program. I showed him the picture and asked him if he remembered going there. He said ‘yes.’ I then asked him if he took his mother with him, to which he replied ‘no.’ I asked him if his mom wanted to go, and he said ‘yes.’ So he is definitely still sharp on some things, because I begged him to let me go but he only wanted to take his dad. 😦 (He’s such a daddy’s boy.) One generous person sent him a #7 Laker jersey autographed by Lamar Odom, along with an autographed Laker Girls Photo. This will have to be guarded dearly, as many an envious eye has longed upon it. 🙂 “

Isn’t she amazing? As you know, for months I have been requesting that you send cards to Steven to help keep his spirits up and keep him motivated as he fights the good fight. As you can see, it means a lot. He can definitely feel the love, as can his mom, and I am continuously touched by the amazing generosity of wonderful friends. Thank you. This battle Steven has been fighting has helped so many people prioritize the most important things in life – friendship, loved ones, family, moments, love. It has been a gift to all of us that way, and it is incredible to see that inspiration show up in tangible form, in the mailbox. I would once again encourage you to keep doing these things. No one is giving up here. If Steven’s brave spirit has decided to fight and win, then with the help of miracle worker doctors, hope is kept alive.

If you would like to send Steven a card with encouragement, continued well wishes, motivation and good cheer, please mail them to him at:

Steven Wilson
c/o Denise Sargent
10111 S. Sandusky Ave.
Tulsa, OK 74137

If you would like a red TEAM STEVEN bracelet to keep him close to your heart, I mentioned previously that an account has been opened for the family. Any donation you give will get you a TEAM STEVEN bracelet. If you would like to help, please give whatever amount is in your heart to help his family with medical expenses as they continue to fight this fight. Donations can be sent to:

Steven Wilson Benefit Account
c/o Sharon VanOrsdol
Community Bank
P.O. Box 1020
Bristow, OK 74010
918-367-3343

To receive your bracelet: Once you make your donation, please email me at valeriesargent@yahoo.com to let me know, and be sure to include your name and mailing address. We expect the bracelet order to arrive next week and will be mailing them out once received.

Lastly, THANK YOU for your continued prayers, support, love and energy. We all feel a little manic depressive with the ups and downs of this emotional roller coaster. Our hope is that Steven continues to surprise us as the new doctor works on a new plan for a miracle. Keep sending all of that good mojo. I would swear that it’s working. Steven is an inspiration to us all. Bless that sweet boy, and thanks for your support!!!

Much love,
Valerie

Baby Steps of Progress – Donations Accepted

Another update email I sent on Steven’s condition, with latest info on how to contribute to the family.

Hello friends,
First, I don’t want to bombard you, so don’t worry … these update emails will not be daily. BUT I wanted to let you know that the overwhelming response and prayers have made such a tremendous difference, and there ARE ways you can continue to help. We are all believing in miracles, and hope is alive. Thank you for your support of my sister-in-law and her brave son.

We have a fighter on our hands. Since yesterday, Steven has begun to produce white blood cells again. He has gone from 0% production to .1% … seems like a small number, but it is HUGE, because it means that his body is still producing the ability to fight infection. If they can just buy him enough time to enhance that production – we need about 10 days for that – then they will be able to fix the adbomen infection to begin chemo again to resume the fight against the cancer. There is a game plan in place for that. So now, focus on increased white blood cells and time to fight that infection! I believe in specificity. 😉

Interestingly, his LDH level continues to drop!!! This means the chemo he received last week for 3 days before leaving St. Louis is still at work against the cancer, and cancer cells are decreasing! He is sleeping a lot, but has had funny moments: 1.) His mom saying, “I love you, Steven,” and him responding, “Mom, stop saying that.” LOL – teenagers. It was a bright spot in her day. 2.) He awakened last night to see his brother Rocky there with him. He said his name and then high fived him. Awesome. I hope those moments make you smile as you understand your good thoughts and prayers at work when they didn’t know if he’d ever regain consciousness. Pretty amazing.

Anyway, my purpose in sending this update is because MANY of you have asked for ways in which you can help in addition to sending those wonderful healing thoughts and prayers or cards to Steven. We now have a way for YOU to make an even bigger difference for Steven and his family. We want to try to help the family with medical expenses.

As you can imagine, from a battle against cancer that started in October to spending over the past month in the hospital, combined with family leave and loss of income, this would put a difficult financial strain on any family. We have just placed a huge order for more TEAM STEVEN bracelets! These bracelets are a great way to keep Steven close to your heart – when you look down and see that snazzy red band on your wrist, it’s a daily reminder to send him light and love.

Denise’s sister, Michelle, opened an account for Steven’s family today. Any donation you give to the family will get you a TEAM STEVEN bracelet, so if you would like to help, please give whatever amount is in your heart to help his family with medical expenses as they continue to wage their war on stupid cancer. Donations can be sent to:

Steven Wilson Benefit Account
c/o Sharon VanOrsdol
Community Bank
P.O. Box 1020
Bristow, OK 74010
918-367-3343

I am looking into the possiblity of being able to make online donations as well in order to provide a convenient method of giving, but don’t have details at this time. Stay tuned.

To receive your bracelet: Once you make your donation, please email me at valeriesargent@yahoo.com to let me know, and be sure to include your name and mailing address. We expect the bracelet order to arrive next week and will be mailing them out once received.

The TEAM STEVEN group on Facebook has reached nearly 1,000 members in the past few days!!! UNREAL!!!! This show of support and love from people all over has meant the world to Steven’s mom and family. It’s a great way to watch his progress as well. Here is a link if you are on Facebook and would like to join the group:
http://www.facebook.com/p.php?i=543254174&k=52F53ZV3QTX15AEITAXVPVW2RR1B6Z&oid=10150104869275494

So, no one ever said I was short winded … 😉 But hopefully you realize that this is all out of gratitude that Denise’s son is responding to all of the fantastic healing energy being put out into the world just for him. Johann Wolfgang von Goethe said:
“The moment one definitely commits oneself, then Providence moves too. All sorts of things occur to help one that would have never otherwise occurred … unforseen incidents, meetings, and material assistance, which no man could have dreamed would come his way.”

Remember in the movie Field of Dreams, “If you build it, they will come”? Thank you for showing up, for your support, for your love. Further updates will only be provided for anything major that might happen, so trust that when you’re not hearing from me, that Steven is making his baby steps of progress, day by day. Thank you for your unbelievable good thoughts and prayers that are causing a shift we never dreamed of in the health of an amazing boy. He lives. He fights. He wins. The incredible power of intention and prayer at work. Thank you.

With love and gratitude,
Valerie

Holding on for a Miracle – Please Send Cards

This is an email I’ve sent out to my contacts not necessarily on FB’s Team Steven page, detailing the latest in Steven’s journey for those who are interested. 

Oh, my friends … this morning I thought I would be writing a much different email to you. After spending nearly a month at the Children’s Hospital in St. Louis, doctors told Steven’s parents this past weekend to prepare for the unimaginable. Two different types of chemo didn’t work … cancer spread further. His treatment was complicated by the need to protect his one transplanted kidney. The final chemo available to him that they started last week caused so many horrible side effects. He was unconscious, and too many things were going wrong for medicine to fix. The cancer tumors around his intestines caused a rupture and infection set in; he did not have enough white blood cells to fight the infection, therefore surgery was not an option. They were just trying to keep him comfortable enough to fly him back to Tulsa today to be close to family, leaving everything in God’s hands.

All I could do last night was cry, thinking of my poor sister-in-law, who has already lost a brother to melanoma, now having to deal with the very real thought of losing her 17-year old son. We all braced ourselves for the worst. Everyone was prepared to say goodbyes. Denise was praying for his comfort and strength to let him go as Steven’s father, Steve, prepared to lose his only child. My brother was struggling with the idea of losing his stepson, and trying to be a rock for his wife. Our hearts were all breaking for these brave parents. BUT THEN … Steven arrived at St Francis Children’s Hospital ICU today in Tulsa.

Leave it to Steven, that amazing little fighter that he is, to surprise us all! Through the clouds came light. He was AWAKE and TALKING, surrounded by his loved ones. Next thing you know, the doctors said the LDH cancer cell levels had dropped significantly since his last chemo treatment. WHAT?!? We couldn’t believe it. There is now a glimmer of hope. If they can overcome the perforations in his intestines, Steven may have a shot at a miracle!! I am cautiously optimistic … but hey, crazier things have happened, right? It’s true! The doctors at St. Francis aren’t giving up! And neither is Steven. Now that he’s back home near family, the support, love and prayers will help boost his spirits and keep him motivated.

Sooooo, a very big THANK YOU to all of you for the many awesome prayers and good healing thoughts you have sent to Steven. There was a huge boost this weekend from those who joined the Team Steven group on Facebook, with now over 750 members cheering him on and offering support to the family. Apparently everyone was sending some REALLY good miracle mojo, because we didn’t expect to see what they saw today. Please keep the good stuff coming! He can FEEL your love and support!!! We’re all really hoping there’s a miracle in store for this sweet boy …

Denise thanks everyone who has prayed, sent cards and/or gifts during this time, and wants you to know that your thoughtfulness has been much appreciated. We have seen today the power of positive thinking, healing energy and prayers at work, so please continue to send some light and love his way.

Again, if it is in your heart, I hope you will take a moment to send Steven a card with encouragement, continued well wishes, motivation and good cheer. Send them to him at:

Steven Wilson
c/o Denise Sargent
10111 S. Sandusky Ave.
Tulsa, OK 74137

Now that he’s back in Tulsa, he can get them more quickly, and the support is amazing.

I am often humbled by the amount of caring pouring out from my friends. Steven is a lucky guy to have so many great people on his team, pushing for a victory. And I am a lucky girl to count you among my friends, knowing that so many people are sending good thoughts, prayers and love to a young boy who has inspired others with his bravery. It means more to me than you know. I hope it keeps working. Thank you.

Love,
Valerie